For those who know EG’s story of near-death and her journey back to the stage, and have wanted to know more about Encephalitis, we’ve compiled some information here.
You can read EG’s story here. http://www.EGKightMusic.com/egs-story
EG has received support and encouragement from the members of the Encephalitis Global forum, led by Wendy Station in Canada, and from Dr. Ava Easton with the Encephalitis Society in the UK.
EG’s photograph, entitled “Fog,” depicting her view of the world after a life-changing illness, recently placed 3rd in the Encephalitis Society’s #ShowYouKnow contest, aimed at raising awareness for World Encephalitis Day.
In her quest to learn more about this illness, EG found that there aren’t a lot of answers out there, for her and her fellow survivors whose stories she reads on the forum. But she did learn that the Johns Hopkins Encephalitis Center is one of the only dedicated centers in the United States that provides expert clinical care for patients with encephalitis. The number of people diagnosed each year with encephalitis is not as great as cancer or heart disease, so this illness doesn’t get the attention it deserves. We want to change that.
At Johns Hopkins, a multidisciplinary group of specialists in neuroinflammation and neuroinfectious disease, neuro-critical care experts, infectious disease physicians, laboratory pathologists, and rehabilitation specialists are working to tackle this challenging disease.
EG is now committed to raising awareness about Encephalitis and the Johns Hopkins Encephalitis Center.
According to Dr. Arun Venkatesan, Director of the Johns Hopkins Encephalitis Center:
– The overall incidence of encephalitis is between 5-10 per 100,000, in both Westernized and tropical settings.
– That translates into between 20,000-35,000 cases yearly in the U.S.
– It is likely that factors such as increased travel, globalization, and environmental changes will expand the geographic distribution of some of the insect-borne encephalitides, thereby increasing the incidence of encephalitis overall.
– About 50% of the time, the specific cause of encephalitis cannot be identified.
– Encephalitis is associated with a mortality of 5-15%.
– The majority of survivors note significant physical, mental, and/or emotional changes that can be quite disabling including problems with memory, concentration, attention, mood, pain, seizures, fatigue, and headaches.
– Significant changes may occur in the ability to function day-to-day even if there is a complete physical recovery.
To learn more about the Johns Hopkins Encephalitis Center, visit their site.
For more information, click the links below.
Johns Hopkins Researchers Identify Conditions Most Likely to Kill Encephalitis Patients
The Encephalitis Center
For an in-depth look at the history of Johns Hopkins, and a list of their cutting-edge ideas and values.
And to learn about Dr. Ava Easton and the work that the Encephalitis Society of the UK is doing, visit their website. http://www.encephalitis.info
And if you are a survivor, or have a loved one who is, consider joining Encephalitis Global, started in 2007 by Wendy Station, another survivor. They are currently over 1,500 members strong. www.encephalitisglobal.org